On what would have been Marisa Tufaro’s 19th birthday, the nonprofit bearing her name is announcing it has donated a quarter of a million dollars since its inception to assist pediatric patients and other children in need throughout the greater Middlesex County area.
In exactly five years, The Marisa Tufaro Foundation, through the remarkable generosity of individuals who have donated or participated in fundraising events, has made a profound impact, enabling Marisa’s parents, Cyndi and Greg, to pay forward the kindness of others.
The Marisa Tufaro Foundation, which makes community service an integral part of its mission, has also spearheaded multiple initiatives, resulting in the collection of thousands of toys, nonperishable food items, winter coats, baby supplies and other items for donation upon which the nonprofit has placed no monetary value.
The foundation has awarded 38 college academic scholarships totaling $26,500 in Marisa’s name to Middlesex County high school graduates, and an additional 13 scholarships for middle school and elementary school students from Middlesex County to attend a weeklong summer art camp at Rutgers University’s Zimmerli Art Museum.
The nonprofit has benefited from dozens of fundraisers, ranging in size from tiny lemonade stands on suburban streets to Greater Middlesex Conference-wide all-star games and tournaments in which student-athletes from the entire league have participated.
The Marisa Tufaro Foundation, which is committed to being a source of comfort to hospitalized children and their families, as well as providing assistance to underserved children, has partnered with other local nonprofits who share its mission.
The foundation has assisted multiple families whose children are in medical crisis, providing financial support through the payment of medical and/or personal expenses to help lessen the burden of parents who have lost wages while spending time at the hospital or at home caring for a loved one. Respecting their privacy, the foundation never divulges the names of those individuals or the dollar amount of assistance it provides.
Marisa received outstanding care from the staff and physicians at Bristol-Myers Squibb Children’s Hospital at Robert Wood Johnson University Hospital in New Brunswick, Saint Peter’s University Hospital in New Brunswick, Children’s Hospital of Philadelphia, New York-Presbyterian Morgan Stanley Children’s Hospital, Boston Children’s Hospital and from some of the outpatient services Children’s Specialized Hospital provides.
The Marisa Tufaro Foundation has been blessed to give back to each of those medical centers.
The nonprofit, which has been featured in numerous publications, including the print edition of the Boston Globe and online at USA TODAY, is a fitting way to keep alive Marisa’s indomitable spirit and allow her legacy to be one of helping others.
In announcing a partnership between The Marisa Tufaro Foundation and the Rutgers Robert Wood Johnson Medical School’s Department of Pediatrics, Rutgers Today featured the nonprofit.
Robert Wood Johnson University Hospital featured the foundation in an edition of its Healthy Together magazine, while Children’s Specialized Hospital profiled the nonprofit in one of its annual reports.
News 12 New Jersey’s Della Crews featured The Marisa Tufaro Foundation on one of her weekly Spotlight New Jersey broadcasts.
Before the coronavirus pandemic struck, the foundation conducted several high-profile events including a boardwalk-themed Family Fun Night for pediatric patients and their families at a children’s hospital, a Day at the Ballpark for Special Olympic athletes and their families which Teamwork Unlimited Foundation co-sponsored, and a Holiday Knight Toy Drive at an Old Bridge High School football game.
The foundation continued its public efforts earlier this month, conducting a charity walk and food drive in advance of the inaugural Marisa Rose Bowl, an intra-county charity all-star football game featuring recently graduated players and cheerleaders from Middlesex County high schools.
Marisa, who would have graduated last year from Edison High School, was born with a complex cardiac defect that required six open-heart surgeries.
Despite being hospitalized for more than two years and maintaining hundreds of doctor’s appointments, she was an honor roll student involved in myriad extracurricular activities who lived a vibrant life that inspired.
After her sixth surgery, Marisa developed two life-threatening conditions that necessitated a heart transplant. A postoperative complication developed into a rare form of cancer, known as post-transplant lymphoproliferative disorder (PTLD), that riddled her brain and body.
Marisa succumbed to her illness following a valiant battle on Jan. 30, 2017. She was just 13 years old.
Earlier this year, Marisa’s parents shared the powerful story of their daughter’s valiant battle with PTLD during a historic patient-focused drug development meeting with U.S Food and Drug Administration leaders in the hopes her courageous journey will impact treatment of the insidious disease.
The National Organization for Rare Disorders hosted the first-of-its-kind meeting May 4 for the patient community, researchers, medical product developers and health care providers. The meeting gave a powerful voice to inspirational PTLD survivors, as well as grieving caregivers who lost a loved one to the disease.
The FDA is now taking into account those collective shared experiences, perspectives, expressed needs and priorities while considering medical product development and regulatory decision making for PTLD treatment.
The Marisa Tufaro Foundation has created a PTLD resource page on its website to assist patients diagnosed with the disorder and their families.
The Marisa Tufaro Foundation’s eight-member board of trustees includes Senator Patrick J. Diegnan Jr., Greater Middlesex Conference Executive Director Frank Noppenberger, and Dr. Joseph Gaffney, Professor of Pediatrics and Division Chief, Pediatric Cardiology at Robert Wood Johnson Medical School and Robert Wood Johnson University Hospital.
As a small nonprofit, The Marisa Tufaro Foundation distinguishes itself from others, publishing complete stories about fundraising events and full profiles of scholarship recipients on its website. The foundation has published nearly 300 stories, all of which are shared on the nonprofit’s Twitter and Facebook pages.
The foundation has been blessed with incredible support from statewide and local media including USA TODAY NETWORK New Jersey, NJ.com, MyCentralJersey.com, the Home News Tribune, the Courier News, Central Jersey Sports Radio, TapInto and others.
Marisa’s parents are grateful beyond words for every penny and every second of time that has been donated to the nonprofit bearing their daughter’s name.
Blessed with incredible support, Cyndi, a longtime Edison Township Public Schools educator, and Greg, a former journalist who now serves as Senator Patrick J. Diegnan Jr.’s chief of staff, will never find the right way to express their appreciation.
They can only hope the foundation’s actions speak louder than words.
Following are some of the ways The Marisa Tufaro Foundation has assisted Middlesex County children in need.
Partnered with Creature Comfort Pet Therapy, a highly respected Morristown-based nonprofit, to provide fully funded grants to make visits from certified therapy dogs available to Middlesex County schools, libraries, and other facilities serving children.
In honor of Edison High School’s graduating Class of 2021, of which Marisa would have been a part, our nonprofit made 10 separate donations of $2,021 – totaling $20,210 – to organizations who share The Marisa Tufaro Foundation’s mission of helping Middlesex County children in need.
Donated $8,000 through the first annual Horizon Blue Cross Blue Shield of New Jersey Greater Middlesex Conference Baseball Coaches Association charity golf outing, of which our nonprofit was the beneficiary, to Bristol-Myers Squibb Children’s Hospital’s Child Life Program.
Partnered with the Give-Back Initiative to donate gift cards valued at $100 each to 44 Edison Township families in need, helping them purchase food, necessities and presents during the holiday season.
Provided Thanksgiving Day dinners to patients and their families at PSE&G Children’s Specialized Hospital in New Brunswick.
Provided funding for a part-time healthcare social worker to assist families of pediatric patients under the care of Rutgers Robert Wood Johnson Medical School’s Department of Pediatrics’ Division of Pediatric Cardiology.
Partnered with the Colonia High School football team to tackle a Super Bowl-themed community service project that benefited pediatric patients and their families at PSE&G Children’s Specialized Hospital in New Brunswick.
Donated to Women Aware’s PALS Program, which offers counseling for children (ages 3-12) and supportive services including individual and group creative arts therapy counseling sessions to families who have been victimized by domestic violence and abuse.
Sponsored more than 80 South Brunswick High School student-athletes, who donated their time and youthful energy to participate in a charity kickball tournament benefiting an inspirational boy living with an incurable and terminal disease.
Established a fund at Children’s Hospital of Philadelphia, from which Marisa received outstanding care for her entire life, to provide financial support to families of pediatric patients from Middlesex County in medical crisis by helping to pay medical, personal or incidental expenses.
As a way of giving back to Middlesex College, which profoundly impacted the lives of The Marisa Tufaro Foundation’s namesake and her parents, the nonprofit has donated to the school’s Child Care Student Fund.
Partnered with Woodbridge High School through its “Pictures with Santa” event to make an $1,800 financial and gift card donation to Bristol-Myers Squibb Children’s Hospital in support of the hospital’s virtual toy drive.
Donated a total of $3,000 to PSE&G Children’s Specialized Hospital and the Lakeview School in honor of the football players and cheerleaders who would have participated in the 27th annual Middlesex-Union County All-Star Game, a charity event which the coronavirus pandemic canceled.
Donated to Bristol-Myers Squibb Children’s Hospital’s newly established extracorporeal membrane oxygenation (ECMO) program, a specialized cardiac and respiratory support system that saved Marisa’s life at another medical facility following her heart transplant.
Conducted a boardwalk-themed Family Fun Night for consecutive years at PSE&G Children’s Specialized Hospital, where the sights, sounds and smells of the Jersey Shore were brought to patients and their families through carnival games, food, prizes, music and more.
Partnered with the Give-Back Initiative to donate $4,000 to Bristol-Myers Squibb Children’s Hospital in New Brunswick for the purchase of iPads, as well as age and developmentally appropriate toys and games for pediatric patients.
Partnered with Teamwork Unlimited Foundation to treat Special Olympics athletes from the Raritan Bay Area YMCA to a Somerset Patriots game experience.
Partnered with the Saint Joseph High School football program and campus ministry to pack and donate more than 200 “Weekend Snack Bags” for pediatric patients’ families at PSE&G Children’s Specialized Hospital in New Brunswick.
Funded the purchase of uniforms (shirts and shorts) for campers at Kiddie Keep Well Camp, which serves more than 600 underserved Middlesex County children annually.
Partially funded the Make-A-Wish of a Middlesex County girl who was born with a complex cardiac defect to vacation with her family at Walt Disney World.
Provided summer art camp scholarships to Rutgers University’s Zimmerli Art Museum for 13 Middlesex County elementary and middle school students.
Provided college scholarships to 31 high school students whose classroom performance and extracurricular involvement reflected Marisa’s educational success and whose charitable endeavors aligned with our foundation’s mission.
Sponsored a Middlesex County elementary school’s field trip to Special Strides Therapeutic Riding Center in Monroe, where students from self-contained autistic classes were afforded the opportunity to interact with horses and baby goats.
Partnered with Woodbridge High School, the Central Jersey bowling community and the Port Reading Fire Department and EMS to deliver more than 1,000 toys to patients at Robert Wood Johnson University Hospital’s Bristol-Myers Squibb Children’s Hospital during the holiday season.
As a way of giving back to the Rutgers University baseball program, whose roster features several players that have supported our nonprofit, our foundation matched the Scarlet Knights’ fundraising efforts with a donation to Bristol-Myers Squibb Children’s Hospital’s child life program.
Assisted multiple families whose children are in medical crisis, providing financial support through the payment of medical and/or personal expenses. Respecting their privacy, the foundation never divulges the names of those individuals or the dollar amount of assistance it provides.
Paid forward the generosity Saint Thomas Aquinas High School has bestowed upon our foundation with a donation to the school community’s annual Ahr Star spaghetti dinner, whose beneficiaries included a 9-year-old boy from Middlesex County with multiple disabilities.
Donated $3,000 to RWJBarnabas Health’s children’s hospitals, paying forward the kindness of football players and coaches who support our nonprofit and in honor of their ability to navigate a pandemic-impacted season.
Partnered with the Edison and J.P. Stevens high school girls basketball teams to collect baby care items to donate to the Edison-based Ozanam Family Shelter.
Partnered with the Middlesex County Association of School Administrators to offer financial relief to parents of children in medical crisis who lost wages while caring for their child at the hospital, who lack health insurance or whose insurance provider won’t cover certain medical expenses.
Funded the purchase of brand-new metal bunk beds for campers at Kiddie Keep Well Camp, which serves more than 600 underserved Middlesex County children annually.
Partnered with Old Bridge and South Brunswick high schools to collect thousands of toys for pediatric patients at Saint Peter’s University Children’s Hospital and Bristol-Myers Squibb Children’s Hospital.
Partnered with the Kittim N. Sherrod Foundation to provide a youth football and cheerleading organization with a bilingual state-of-the art automated external defibrillator, as well as AED and cardiopulmonary resuscitation training for adult members of the organization.
Supported instruction and supplies for an art therapy program at Bristol-Myers Squibb Children’s Hospital, to which our foundation also provided funds for infant mobiles and toy cars staff use to transport children to the operating room for surgery.
Provided money for equipment and supplies for students with disabilities who utilize the Lakeview School’s newly constructed aquatics center.
Partnered with Teamwork Unlimited Foundation to provide medical alert bracelets to children with autism and pediatric patients with chronic illness who receive outstanding care from Children’s Specialized Hospital, which annually serves more than 34,000 children statewide.
Partially funded the Make-A-Wish of a Middlesex County boy who is winning a battle with high-risk neuroblastoma to vacation with his family at Walt Disney World.
Provided physical therapy at Special Strides Therapeutic Riding Center and Project Walk for Middlesex County children whose families do not have health insurance or whose families’ health insurer does not cover the cost of the physical therapy.
In loving memory of Marisa and Laney Grace Stoeckel, donated to Saint Peter’s Children’s Hospital and Team Laney Bug on Congenital Heart Defect Awareness Day.
Jump-started Coach CJ Hendricks’ fundraiser with a $1,000 donation benefiting South Brunswick Public Schools’ Special Olympics Unified programs and a courageous district student living with an incurable disease.
Sponsored 60 boys and girls golfers from the Greater Middlesex Conference to participate in the Tee Off Against Hunger, which raised $25,000 to benefit Hands of Hope for the Community.
Partnered with Edison High School and the Chamberlain College of Nursing for two consecutive years to raise money and collect nonperishable food items to benefit Middlesex County children and their families through Hands of Hope via our foundation’s participation in the Race to Outrun Hunger.
Provided new iPads and gaming system accessories (Xbox and PS4 games, controllers, chargers) for adolescent patients at Bristol-Myers Squibb Children’s Hospital.
Partnered with Woodbridge High School and the Central Jersey bowling community to deliver hundreds of toys to patients at Morgan Stanley Children’s Hospital, where Marisa underwent a successful heart transplant.
Made a donation in recognition of Piscataway’s Conackamack Middle School, which honored Marisa during its annual Turkey Trot, to the township’s FISH Hospitality Program, which provides shelter, meals, clothing and other services to homeless families in Middlesex County.
Provided James Monroe Elementary School students with food items to fill a hundred “Weekend Snack Bags” for pediatric patients’ families.
As a way of giving back to the Greater Middlesex Conference, which has been among our nonprofit’s biggest supporters, The Marisa Tufaro Foundation jump-started the league’s fundraising effort to feed county families during the coronavirus pandemic with a $2,500 donation to the Middlesex County Food Organization and Outreach Distribution Services.
Donated more than $2,500 worth of ShopRite, Target and Walmart gift cards to dozens of Middlesex County families in need, helping parents purchase food, necessities and presents for their children during the holiday season.
In honor of the 500 supporters who participated in our Tournament of Roses Parade Charity Walk and Food Drive, which generated more than a ton of food for REPLENISH, donated $2,000 to feed Middlesex County children and their families.
In loving memory of Ron Mazzola, donated to the Division of Hematology/Oncology at The Children’s Hospital at Saint Peter’s University Hospital in New Brunswick.
In honor of the players and coaches who participated in the Soccer for a Cause Charity Festival, our nonprofit made a $1,000 donation to REPLENISH, a regional food bank serving Middlesex County residents including an estimated 30,000 children.
Provided meals and goods for families staying at the Ronald McDonald House of Central Jersey.
Partnered with Middlesex High School to conduct a coat drive for Middlesex County children.
Provided gift cards for pediatric patients and their families.